Southern Rock & A new friend

breathe-and-send
March 2013
I was climbing in Alabama with my southern crew and one day while doing my treatments at Horse Pens I met Justin. He came up asking me questions about my nebulizer and I was in no mood to fully explain myself so I was relieved when Drew spoke up and said “oh he has Cystic Fibrosis” Justin put out his ciggarett and said he had dated a girl from Quebec that has CF and was also a rock climber. The conversation got really exciting from here. I was having a rough day and somehow felt less alone knowing she had been here at HP before and probably knew the garbage weather i was stuck in waiting for a nice day to climb. Her name was Marie and she was 34 and was reasonably healthy. Her Brother also has CF and was on the transplant list. Thats about all I knew but every time I saw Justin we spoke of her and how he would help us find each other on FBook. I was thrilled when she sent me a message. She reviewed my old website and it really inspired me to get my new site up and going so we could chat on there about CF. Our conversations are so interesting I am sure many people would love to know more about our stories and how similar they are. Her FEV1 is measured differently or at least called something different. But she says she is at 70% and in the 50’s when she is sick. I am so excited and so is Ben Smith of kILO hOTEL pRODUCTIONS.  As I write this on March 13 I am on my way to Bishop California to climb and he texts me that he too can’t stop thinking of how interesting it would be for us to meet and not be able to touch each other. I envision so many scenes in the film and can’t wait to see her.  I’m interested to see her tiny climber body, and to hear her speak french. Ha, is there anything more sexy?

 

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One Response to “Southern Rock & A new friend”

  1. Zhanna April 21, 2013 at 11:58 PM #

    I just came across this blog site! What a great idea. I don’t have CF, but I do have my own health concerns and I can relate to your post in a different way. You have a very interesting life indeed! So, I live with CP and it affects how I walk, but I have a very optimistic view on things. I like to think that being different brings quality people into my life. Though I am single at the moment I believe that being the way I am kept me from spending time with people who have different priorities when it comes to looking for a partner. I can relate to the situations where people make too much of a big deal out of my circumstances. I can just as easily relate to when people act like they don’t care at all. It’s easy to feel misunderstood in either of those situations.Here is my advice to you. I don’t think you have an obligation to tell your date on the first date. I also think you should be comfortable telling the person when you are ready to. If the person reacts poorly, it can be difficult, but just know that it is making room for someone with a bigger heart.You sound like a quality guy and you will find someone who is of the same quality because that person will see beyond the here and now. They will know that loving someone when things getting tough is more rewarding than loving someone in an easy situation because that love will have to be stronger. No situation is a waste of time. I’ve had all kinds of reactions to my differences and I have let them all go. If you haven’t already found your partner, just know that when the person comes along, they will find strength they may not have even known they had and nothing will change how they feel and you should setting for nothing less.All the best,Tammy

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