Tag Archives: FEV1

UAB Oct, 2015

Oct 4, 2015 Fev1 is 53%. The first time I blew it was a 45, then 50, then a 53. Frustrating but ok what did I buy with that %? I spend those FEV1% like an adventure budget. When I dip too much into the red I have to make up for it later. Here […]

Unprecedented Jan15.UAB

Its been 15 days, they wish I’d stay another week. I have been sent home early but never faced this decision. I am leaving the hospital because they can’t do anything else for me. A month before I came in I had struggled with flu-like symptoms that same week-its gotten so I only want to […]

Venezuela: AuyanTepui

Well… after months the story came out in Climbing Magazine November issue of 2014. My comments were refined and amended for public consumption. Here they are raw and unAbridged. I will include the article so you can see Gustavo & Gary’s experience too. Enjoy:) http://www.climbing.com/places/tepui-top-bouldering-in-venezuela/ It took months for me to write this: I finally […]

The Art of Healing-UMMC

http://www.umc.edu/Administration/Institutional_Advancement/Children_s_Hospital/2014-05-01-02_The_Art_of_Healing.aspx So I finally sat down and read this article. Some of it is not factual, as my grandmother says its mostly accurate. For example I am not sponsored by Camelback, our trip we took to Venezuela was. The Yeti at RAMP was 33ft tall. I don’t remember eating steak every night but I did […]

Cystic Fibrosis Explained (Jack Kruse)

Wow…man of his word… I’ll be studying this forever probably but this is Jack Kruse’s explanation of Cystic Fibrosis.  I’ll admit I’m a bit partial but Jack and my Pawpaw are the greatest minds Iv’e ever had the pleasure of knowing. To understand the link between Pawpaw and Jack you should click that hyperlink and […]

Merry Christmas Mom:)

I had a dream on Christmas Eve: I dreamed someone asked me what it was like to have Cystic Fibrosis. I told them to think of a house- we measure its grander by its tall ceilings and spacious rooms. Men awaken in the morning to find the ceiling right were it was when they closed […]

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